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LILIA'S JOURNEY WITH MS

With infant twins and a toddler at home it’s fair to say life was busy for 33-year-old Lilia. And then, out of the blue, Lilia was hit with the reality that she had Relapsing-Remitting Multiple Sclerosis.

Severe vertigo, fatigue and numbness across her left torso were the first symptoms Lilia experienced. As the numbness spread, Lilia was rushed in for an emergency MRI, with news of the devastating diagnosis to follow.

“I did not cope well with my diagnosis initially – it took a very long time for me to accept I had MS and I took my time reaching out to MSWA. I had a preconceived idea of what MS was, but my neurologist assured me that a MS diagnosis wasn’t as scary as it was 10 years ago. He told me that there were a lot of treatments available now to slow disease progression and immediately started me on Tysabri infusions. Since then, annual MRIs have shown that I have no new lesions.”

Lilia has since regained most of the use of her left arm, but still has slight weakness and she regularly gets dizzy and fatigued. Simple everyday tasks can leave Lilia exhausted, but she is very fortunate to have a great family support network, expert advice on hand through her MSWA nurse and domestic assistance from MSWA.

Lilia also attended a MSWA support session at the Beechboro Services Centre for those newly diagnosed with MS. It was at one of these sessions that Lilia met a mother in her fifties who had lived with MS for nearly 20 years.

“Her story really resonated with me, as she was diagnosed in her mid-thirties, not long after having a baby. But here she was living a seemingly normal life with a now healthy happy 18-year-old son… it gave me so much hope for me and my family!”

“I’m very glad to be an MSWA Member and wish that I had accessed it sooner.”

MSWA is one of the biggest contributors to MS research in Australia. This year alone, MSWA has made a record breaking $3.5 million contribution to neurological research.

“Every ticket sold in the MSWA Mega Home Lottery supports thousands of Western Australians living with MS and other neurological conditions, like me. Thank you for making a life-changing difference, I will forever be grateful for your support’.